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October 1, 2004

How to avoid caregiver burnout

During the "sandwich years," women are caring for teens and parents.
ALAN KWINTER SPECIAL TO THE JEWISH BULLETIN

There is no disputing that women play a definitive and central role in Jewish culture and family life. The Torah gives women special recognition in terms of matriarchal lineage and their role in religious ceremony. Today, in daily life, many women are the glue that holds the family together through their role as primary caregivers. However, having a central role in your family's well-being can be both a blessing and a curse, depending on the demands one faces.

Many women in their 40s and 50s are experiencing what is being referred to as the "sandwich years." Their children, while into their teens, are not yet fully grown and still require guidance and nurturing on a daily basis. At the same time, their parents are aging and increasingly require time and attention in order to live healthy and fulfilling lives.

Women may feel pulled in so many directions by the needs of work and other family members that they might begin to lose sight of caring for themselves and their own primary relationships. This phenomenon has been identified as caregiver burnout. As the baby boomer generation moves through mid-life, this will undoubtedly become an increasingly important issue for women who seek to maintain their own mental health and physical well-being.

Knowing when to bring in outside help to assist with the care of an aging relative can be a difficult decision, perhaps fraught with guilt, second-guessing and family disagreements. Parents may initially resist the idea of "a stranger" coming into their home. But it is important to realize that if you are stretching yourself too thin on the caregiving end of things, you may ultimately end up wearing yourself down and begin to experience health problems yourself.

Be aware of the signs

How do we know when it is time to call in outside help? That depends on your own instincts, your family situation, your doctor's advice and the health and abilities of your aging relative. Your family doctor can be of immeasurable help in judging when an elder will begin to require more intense levels of support.

Certainly, if you find yourself in a situation where you are providing daily care of any type, now may be a good time to bring in professional assistance. If an older person in your family has experienced a diminishment of physical capability due to a fall or a stroke, assisting them with routine activities can be very demanding. Helping an adult with physical movement and functions may require more strength than you can muster without endangering yourself. If the physical impairment is due to surgery or an injury that will heal, temporary professional assistance can truly make the difference between an easy recovery and that which can be quite stressful for all concerned. Respite care in the evenings, on weekends or during vacation time allows you to take a break and avoid burnout. You can enjoy a break from the routine of daily life with peace of mind, knowing that your family member is receiving optimal care.

People experiencing the difficulties associated with dementia usually also require special assistance. One of the hallmarks of Alzheimer's disease and many other forms of dementia is short-term memory loss. This can be particularly problematic when it comes to monitoring the intake of prescription medications and ensuring balanced nutrition. Alzheimer's sufferers may also have difficulty with spatial relations and can experience dizziness and problems with balance and disorientation.

Resources are available

The B.C. health-care system is increasingly moving towards promoting at-home care. Older people who are able to remain living in their own homes with appropriate care can continue to live vital and fulfilling lives. Professional help can be brought in to assist with a variety of needs from handling grocery shopping, laundry and housekeeping to providing physical therapy, personal hygiene assistance and nursing care.

If you think that some outside help is in order for your family but you aren't sure how to proceed, a visit with the doctor will help to outline your family member's needs. The doctor can also address the topic of bringing in outside help with the relative who needs the assistance.

Discussing and developing a plan of action with your spouse and/or siblings enables everyone to explore the possibilities for bringing in help and reaching a comfort level with this stage in the elder person's life. It also allows everyone to express their concerns before any action is taken, ensuring that the family is moving forward as a united group.

Today's home support agencies provide a range of services that allow seniors to live with comfort, security and dignity in their own homes. Meeting with several agencies that provide home support care will enable you to discuss your family's needs and compare the costs attached to differing levels of service. It will also allow you to get a sense of the personality of each agency, the type of people they employ as caregivers and whether you feel they would be a good match for you and your family. Be sure that any caregiver coming into your home is bonded, insured, screened and registered with the Worker's Compensation Board of B.C., and that they will be properly supervised.

Several caregiver support groups are available around the province. These groups can provide a welcoming and supportive environment in which to discuss your concerns and questions with people who are experiencing a similar family transition. Ultimately, you and your family should feel supported in making a decision that best suits your situation and needs. Everyone deserves a lifestyle free of worry, stress and guilt, and that includes you.

Getting help and support you need

For more information about home support care and support groups, people can contact:
www.alzheimerbc.org (Alzheimer's Society of B.C.)
www.bccf.bc.ca (B.C. Council for Families)
www.rhss.bc.ca (Vancouver/Richmond Health Board)
www.hollyburn.ca (Hollyburn Support Services)
• e-mail [email protected] (Ace Personnel Domestic Services Inc.)

Alan Kwinter is the founder and executive director of Hollyburn Family Services, a community-based organization that has been providing a range of integrated support services to families in the Greater Vancouver region since 1990.

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